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Product Information Sibling Leadership Network Research Brief: Young Siblings of Individuals with Intellectual/Developmental Disabilities

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This research brief from the Sibling Leadership Network discusses young siblings (0-18) of individuals with intellectual/developmental disabilities (I/DD). Young siblings have both positive and negative experiences with their brothers and sisters. Brothers and sisters are likely to take on the role as caregivers, but they are usually not included in service plans.

This research brief focuses on positive and negative experiences, sibling relationships, caregiving roles, and involvement in service coordination. It also includes resources for the needs of young siblings such as Sibshops. Sibshops provides an international program for young siblings of individuals with disabilities. They include activities, discussions, and snacks for participants. There are also language and behavioral interventions that teach the sibling how to interact with their brothers/sisters and provide social opportunities for individuals with I/DD.
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This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu.
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