|2012 Annual Disability Statistics Compendium|
This report has statistical information about people with disabilities.
|2013 Annual Disability Statistics Compendium|
This report pools disability statistics published by various federal agencies together in one place.
|2013 National Disability Policy: A Progress Report: “Strength in Our Differences”|
This annual report explains how well U.S. Federal laws and programs are meeting the needs of people with disabilities. It also looks at how things can be improved.
|A Medicaid Block Grant Program: Implications for People with Disabilities|
This report reviews how federal block grant programs limit federal spending on Medicaid. It further explains how these programs impact people with disabilities.
|A National Review of Home and Community Based Services (HCBS) for Individuals with Autism Spectrum Disorders|
This research brief is about the use of waivers with people who have some form of autism.
|A Qualitative Study of the Experiences of Transition-Age Youth with Disabilities in Relation to SSI Redetermination (Policy Research Brief)|
This Brief explains transition to adulthood through the lens of SSI eligibility.You can download it as a PDF file.
|A Survey of State Disability Policy, 2010|
A report about state policy related to disabilities. Information in the report is from a national survey from 31 states. The purpose of the report is to provide policymakers with information on policies they can pursue in their own states.
|Across the States 2012: Profiles of Long-Term Services and Supports|
A detailed report on the long-term services and supports provided in each state in the United States. Multiple versions can be downloaded for free as PDF files.
|An Independent Evaluation of .... Minnesota's Medicaid HCBS Services|
Report containing the results of an independent evaluation of Minnesota's Medicaid HCBS waiver program for people with developmental disabilities.
|Back to Work: Recent SSA Employment Demonstrations for People with Disabilities|
This Issue Brief describes how well four demonstrations increased the short-term economic self-sufficiency of people who receive SSI and SSDI. full text can be downloaded as a PDF file.
|Benefits For Children With Disabilities|
This booklet tells how children and youth can make use of SSI and SSDI benefits. It is written to parents and updated every year. You can download a copy for free as a PDF file.
|Building a Better Economic Future: A Progress Report for Individuals with Disabilities & Their Families in America|
This is a report about how research, programs and policies can help people with disabilities save money and build a strong asset base. The entire 100+ page report can be downloaded for free.
|Costs, Cuts, and Consequences: Charting a New Course for Working-Age People with Disabilities|
This report asks how money spent at the Federal and state levels is helping working-age people with disabilities move into good jobs.
|Developing Individual Budgets and Reimbursement Levels Using the Supports Intensity Scale|
This report describes recent progress in moving state developmental disability systems using HCBS waivers toward greater efficiency and equity.
|Disability at the Dawn of the 21st Century and the State of the States (2002)|
This book provides a detailed state-by-state analysis of public financial support for persons with MR/DD, mental illness, and physical disabilities.
|Employment First Manual|
This covers key elements needed to support Employment First programs. It is available to buy either as a book or an online presentation.
|Excepted Service-Appointment of Persons With Intellectual Disabilities, Severe Physical Disabilities, and Psychiatric Disabilities|
This is news of a new rule making it easier to hire to people with disabilities for federal government jobs.
|Family Support Services in the United States: 2008 (Policy Research Brief)|
This brief is about family support Services for people with ID/DD. You can download it for free as a PDF file.
A newsletter that provides a monthly summary of national issues shaping publicly-funded disability services.
|Forging a Federal State Partnership|
This is a study of the changes in public policy toward persons with intellectual and developmental disabilities over the past fifty years.
|GAO 2012 Annual Report: Employment for People with Disabilities|
A report about different government programs and how they could be better. Section 30 of the report is about government programs related to employment for people with disabilities. The full text is available online.
|GAO Report: States’ Implementation of the Patient Protection and Affordable Care Act|
This 2012 report shows states responses to new laws expanding Medicaid.
|Guide to Using State Longitudinal Data for Applied Research|
This new guide highlights the opportunities and restrictions that researchers may have when using state longitudinal data systems. The guide also offers ways to address some common problems.
|Home and Community-Based Services: Creating Systems for Success at Home, at Work and in the Community|
This report explains the challenges that states and providers were having in serving people in community-based settings.
|Home and Community-Based Setting Requirements|
This bulletin helps state discern when a setting meets the requirements as "community-based." That means it can receive HCBS funding.
|How is the Affordable Care Act Leading to Changes in Medicaid Today? State Adoption of Five New Options|
This article talks about health reform and changes to Medicaid.
|Initial Impacts of the Ticket to Work Program for Young New Social Security Disability Awardees: Estimates Based on Randomly Assigned Mail Months|
This report looks at how well the Ticket to Work program is working to help people with disabilities find jobs. It also looks at how well this program is saving money.
|Intellectual Disability: Definition, Classification, and Systems of Supports (11th Edition)|
This book is the newest classification and diagnosis system for intellectual disability.
|Issue Brief: New Opportunities for Individuals with Disabilities to Expect Better Quality Services and Outcomes|
This report reviews how states are using their Home and Community-Based Services funding. It warns that many of the people with disabilities being supported are still isolated from their communities.
|Managed Long-Term Services and Supports: President’s Committee for People with Intellectual Disabilities: 2012 Report to the President|
A report that offers a background on Managed Long-Term Services and Supports (MLTSS) and provides suggestions to the United States government.
|Mini-MAX User’s Guide|
This document explains a research-friendly Medicaid database.
|Money Follows the Person Demonstration Program: A Profile of Participants|
A report about the participants in a government program that helps people on Medicaid move from institutions to live in the community. You can download it as a PDF file.
|National Goals for People with Intellectual and Developmental Disabilities|
This book comes out of a federal conference that was held in 2003. It describes the current knowledge and national goals in areas that affect the lives of people with developmental disabilities in the United States.
|Olmstead: Reclaiming Institutionalized Lives|
A state of the states report on the implementation of the Olmstead decision
|One Step Ahead: Resource Planning for People with Disabilities Who Rely on Supplemental Security Income and Medical Assistance|
This guide offers suggestions to people who receive Medicaid or SSI on ways to have money or property without risk of losing their benefits.
|Red Book on Employment Support|
A web-accessible federal publication that provides A - Z information on employment supports for people who receive SSI or Social Security benefits.
|Rights and Reality II|
This is a guide to rights of people with disabilities in Wisconsin. It explains many laws, rules and programs on both the state and Federal level, and can be purchased or downloaded for free as a series of PDF files.
|Section 8 Made Simple: Using the Housing Choice Voucher Program To Assist People with Disabilities, 2nd edition|
Section 8 Made Simple is a 98-page publication covering the U.S. Department of Housing and Urban Development’s (HUD’s) Section 8 Housing Choice Voucher Program in detail.
|Senate Bill 1270: 10 Recommendations|
This is a short workbook written for self-advocates. It has recommendations from work groups that came together to think of ways to improve the quality of life for people with disabilities in California.
|Survey of State Case Management Policies and Practices|
The report from a survey of developmental disability case management services across the United States.
|The 2014 Federal Home and Community-Based Services Regulation: What You Need to Know|
This document explains the many changes made to the Federal HCBS rules in 2014. They were targeted to help make sure people with waivers were truly living in the community.
|The Affordable Care Act and the I/DD Community: An Overview of the Law and Advocacy Priorities Going Forward|
A brief document that provides an overview of what Obamacare means for people with disabilities.
|The Growth of Managed Long-Term Services and Supports (MLTSS) Programs: A 2012 Update|
This report summarizes a study of how states are using managed care models to provide long-term care. Several states include people who have ID/DD. The report can be downloaded as a PDF file.
|Toward the Full Inclusion of People with Disabilities: Examining the Accessibility of Overseas Facilities and Programs Funded by the United States|
This report looks at United States programs that help people in other countries. It provides ways for these programs to be more inclusive of people with disabilities.
|Understanding Medicaid Home and Community Services: A Primer|
A thorough explanation of the role of the Medicaid program in supporting people with developmental and other disabilities to live and work in the community.
|Work Incentive Simplification Pilot (WISP): Recommendations of the Technical Advisory Panel Regarding the Evaluation Design|
A report that gives recommendations for evaluating the Work Incentive Simplification Pilot (WISP), a simplification of the Social Security Disability Insurance work incentives. The report can be downloaded as a PDF file.
|Working While Disabled—How We Can Help|
This booklet talks about working while getting money from the Social Security Administration.
|A Guide to the Supreme Court’s Affordable Care Act Decision|
A brief report that describes the Supreme Court's decision on the Affordable Care Act and how this impacts the future of health reform.
|A History of the Developmental Disabilities Assistance and Bill of Rights Act|
This website explains the history of the Developmental Disabilities Assistance and Bill of Rights Act (DD Act). It shows the records of many important meetings and hearings, and the manuals, reports and reviews from different times in history.
|A Patient’s Guide to Medicare Part D|
A short guide that answers frequently asked questions about Medicare Part D (prescription drug coverage).
|Advocates' Guide to Housing and Community Development Policy|
This 300-page book contains background information and tools for housing advocates, plus short descriptions of more than 60 U.S. Federal programs that help people with low-incomes. You can download it for free
|Archives of the National Information Center for Children and Youth with Disabilities|
Until 2013, NICHCY was the national clearinghouse of information on disabilities and disability-related issues, with a special focus on children and youth (birth to age 22). It's archives are available online.
|AUCD Legislative News In Brief|
In Brief provides a weekly federal legislative update on issues important to people with disabilities and their families. The publication focuses on AUCD's legislative goals developed by the association.
|BusinessUSA.gov Hiring People with Disabilities|
This points users to information all around the web about hiring people with disabilities.
|Centers for Medicare & Medicaid Services’ (CMS) on-line resource for Managed Long Term Services and Supports (MLTSS)|
An online tool that provides basic information about Medicaid Managed Long Term Services and Supports (MLTSS).
|Changing Priorities: The Federal Budget and Housing Assistance, 1976-2007|
This report provides an overview of HUD budget trends from fiscal year 1976 through fiscal year 2006 as measured in inflation-adjusted dollars.
|College Funding for Students with Disabilities|
This fact sheet briefly explains how students with disabilities can pay for college.
Congress.gov is a website that offers information and regular updates on Federal legislative issues in the United States.
|Delivering on the promise - Report of federal agencies' actions to eliminate barriers and promote community integration|
This web page explains the plans of several US Federal agencies to implement President George W. Bush's New Freedom Initiative.
A one-stop shopping website that pulls together information about topics related to disability from across the federal government.
This website has tips and advice about applying for Social Security Disability Insurance (SSDI or SSD), and Supplemental Security Income (SSDI).
|Employment First Manual|
This covers key elements needed to support Employment First programs. It is available to buy either as a book or an online presentation.
|Financing Resources for Affordable Housing: A Brief Overview|
This document briefly describes several financial resource options to be used for the development of affordable housing.
|GAO Report: States’ Plans to Pursue New and Revised Options for Home- and Community-Based Services|
A report from the Government Accountability Office about the four Home and Community-based Service options for Medicaid beneficiaries.
This website has information about applying for money from the Federal Government.
|Guidelines for Successfully Enrolling People with Disabilities in Managed Care Plans|
These are for states to use in setting up managed care programs that would include people with disabilities.
A CMS-funded website that provides technical assistance to states in developing, evaluating and maintaining HCBS waiver programs.
|Health Reform Hub|
This website provides up to date information on the Affordable Care Act (or Obamacare)and how it impacts people with disabilities.
|HIPAA in Home Care DVD|
This DVD describes HIPAA guidelines and teaches home care providers about the importance of maintaining confidentiality in a variety of settings.
|Housing Choice Voucher Newsletter|
A monthly newsletter about the US Government's Housing Choice Voucher Program. This program helps people with low income or disabilities rent or buy a home.
|Illinois Life Span Project|
A central source of information about services available to persons with developmental disabilities in the state of Illinois.
|Long-Term Care 101|
An online presentation that explains what long-term care is in the United States.
Pointers to federal and state websites to obtain information about the Medicaid program.
|Olmstead section of ADA.gov|
A website that provides information about the Supreme Court's Olmstead ruling and enforcement. It says states need to provide services that allow people with disabilities to be fully included in community.
|People with Disabilities and the Affordable Care Act|
This webpage shares many ideas about how the Affordable Care Act can help people with disabilities.
This website is the central location for emergency preparedness information available from the US Federal government.
|Recommendations for CMS Managed Care|
In this document, the National Council on Disability expresses concern over the federal government's plans to use managed care.
|Registered Disability Savings Plan Website|
This website explains the Registered Disability Savings Plan. This is a Canadian Government program for people with disabilities and their families. It helps them plan for their future financial security.
|State Health Facts Online|
A website with health care coverage availability information for all 50 states.
This website has charts of state, national, and individual disability data for agencies that provide employment supports.
|The High Cost of Capping Federal Medicaid Funding|
A fact sheet from AARP that talks about the impact of capping the amount money the federal government spends on Medicaid.
|The Kennedy Foundation Public Policy Guide|
This website has information and articles about the federal policy, and government agencies that affect people with disabilities. It has useful information for advocates at the federal level.
|The Official Website of the U.S. Social Security Administration|
A website for advocates, social service agencies and other third parties that has a lot of information about Social Security services.
|The Olmstead Decision: Implications for Medicaid|
Policy brief concerning the US Supreme Court's Olmstead decision and its implications for the provision of Medicaid services. Though this brief is dated, it is still available online.
A website that includes full copies of United States Laws and proceedings of Congress from throughout history.
|U.S. Department of Housing and Urban Development Information for People with Disabilities|
This website has information about the housing rights of people with disabilities.
|U.S. General Accounting Office|
The General Accounting Office prepares comprehensive reports on many issues for use by members of the United States Congress. These reports are generally available to the public.
|UCP Washington Watch|
A weekly newsletter that provides the latest news on disability policy from Washington.
|Workforce Innovation and Opportunity Act Webinar|
This 90 minute webinar describes the Workforce Innovation and Opportunity Act. It also contains information on state deadlines regarding this Act, and explains why workforce issues are important in the disability community. You can watch it on Youtube.