|‘My Thinker’s Not Working’ A National Strategy for Enabling Adults with Intellectual Disabilities Affected by Dementia to Remain in Their Community and Receive Quality Supports|
This report is about dementia and people with intellectual disabilities. It provides a national action plan. You can download it as a PDF file.
|A Guide to Building Community Membership for Older Adults with Disabilities|
This manual provides practical steps and strategies to help older adults with disabilities become more connected with their communities.
|A Guide to Setting Up a Creative Art Experiences Program for Older Adults with Developmental Disabilities|
This is a guide to setting up a creative art experiences program for older adults with developmental disabilities. It includes 15 ready-to-use activity plans and you can download it as a PDF.
|A Practical Guide for Health Management of Aging Adults with Mental Retardation|
This book provides an outline of physical, and mental health issues common in older adults with developmental disabilities.
This newsletter had articles and updates on work being done by the Research and Training Center on aging with Developmental Disabilities. It was published from 2004-2009.
|Advance Directives and Advance Care Planning for People with Intellectual and Physical Disabilities|
This paper is about end of life planning for people with intellectual or physical disabilities. The full report is available online.
|Ageing and its Consequences for People with Down’s Syndrome A Guide for Parents and Carers|
This booklet talks about aging in people who have Down syndrome.
|Ageing with a Lifelong Disability A Guide to Practice, Program and Policy Issues for Human Services Professionals|
This book is about the aging process for someone with a disability.
|Aging and Developmental Disabilities: Demographic and Policy Issues Affecting American Families|
This is a text of testimony by David Braddock of the Institute on Disability and Human Development, Clearinghouse on Aging and Developmental Disabilities. It was given to the Special Committee on Aging on September 18, 1998.
|Aging and Developmental Disability: Current Research, Programming, and Practice Implications|
A textbook about aging issues in persons with developmental disabilities
|Aging and Disability: Research and Clinical Perspectives|
A text-book discussing many aspects of aging, about both people with disabilities who are aging and aging people who now have disabilities
|Aging and Down Syndrome A Health and Well-being Guidebook|
This handbook is about aging with Down Syndrome.
|Aging with a Developmental Disability|
This paper explains the special needs of elders who have developmental disabilities. It was written in Canada to advocate for better services.
|Aging with a Disability: What the Clinician Needs to Know|
This book is about changes that happen as a person with a disability gets older, ways to deal with those changes, and ways to support people as they age.
|Aging with a Physical Disability (An issue of the series Physical Medicine and Rehabilitation Clinics)|
This is a special issue about aging with different types of disabilities. It is part of a reference series of books.
|Aging with Cerebral Palsy|
This book is about some of the things that may happen as a person with cerebral palsy gets older. It is written for people with cerebral palsy, and can be downloaded as a PDF.
|Aging with Developmental Disabilities: Women's Health Issues|
A fact sheet addressing the most commonly asked questions by women who are aging. Topics include menopause, osteoporosis, heart disease, and how to stay healthy.
|Aging with Intellectual Disabilities and Later-Life Family Caregiving|
This chapter, located in volume seven of an eleven-volume set entitled "Comprehensive Clinical Psychology" looks at caregiving of older adults with intellectual disabilities and how aging affects families, services and supports and future planning.
|Aging, Mental Retardation and Physical Fitness|
This is a fact sheet on what physical fitness is and how it relates to older people with developmental disabilities.
|Caring for the Physical and Mental Health of People with Learning Disabilities|
This book explains health issues common to people with intellectual/developmental disabilities.
|Circles of Support and Mutual Caring|
This booklet has ideas on creating natural support networks for families in which a person with IDD and their older relative are providing essential supports for each other. This is often known as ‘mutual caring.’
|Community Supports for Aging Adults with Lifelong Disabilities|
This book provides information on how to work with older adults who have developmental disabilities.
|Contemporary Issues in Intellectual Disabilities|
This academic book is about many topics affecting people with intellectual disabilities.
|Down Syndrome Families Aging Together as Life Expectancy Lengthens|
This is a web-based article about aging and people who have Down syndrome. As people grow older, it is presenting new challenges for their families.
|End-of-Life Care for Children and Adults with Intellectual and Developmental Disabilities|
A book written to help professionals and families with end-of-life care decisions for people with intellectual and developmental disabilities.
|End-of-life Care: Bridging Disability And Aging With Person Centered Care|
A book about end of life care both for people with disabilities and people who are aging. It has real life examples and chapters that are responses to these papers from experts in the field.
|Exploratory Study Of The Perspectives Of Midlife Adults With Intellectual Disability, Their Parents, And Case Managers Regarding Quality Of Life And Needed Supports And Services|
This doctoral dissertation looked at the possibilities for quality of life for aging individuals with intellectual disabilities.
|Facts for Healthy Aging: Exercise to Feel Fit|
Four fact sheets for people with disabilities about how they can be healthy as they get older.
Five Wishes is a booklet where you put in writing how you want things handled for you at the end of life.
|Hearing Changes in Aging People with Mental Retardation|
A fact sheet providing answers to frequently asked questions about age-related hearing loss, especially for people with developmental disabilities.
|Helping People with Developmental Disabilities Mourn: Practical Rituals for Caregivers|
This is a book for caregivers to help people with disabilities mourn the death of a loved one.
|Impact: Feature Issue on Aging and People with Intellectual and Developmental Disabilities|
This magazine is about supporting aging adults with disabilities. The articles are written by and about people with disabilities and their families. There are also articles from community agencies and researchers.
|Improving Care For Populations Disproportionally Affected by Alzheimer’s Disease and Related Dementias: Report From the Task Force on Specific Populations|
This report is a plan of action to address the needs of people who are most likely to be affected by Alzheimer's disease. One of the groups targeted is people who have Down syndrome.
|Justice in Aging: A Right to Person-Centered Care Planning|
This report provides background on the new person-centered planning and service plan rule for people who are aging and need long-term services and supports.
|Learning Disabilities and Dementia|
This fact sheet talks about dementia and people with intellectual/developmental disabiities.
This program shows people with disabities how to find new leisure activities, and learn new skills. It also helps DSPs.
|Lessons in Grief and Death: Supporting People with Developmental Disabilities in the Healing Process|
A book for helping people with disabilities cope with the loss of someone in their life.
|Letters of Intent Fact Sheet|
This fact sheet is about how to create a letter of intent. Letters of intent are most often written by parents to share future hopes for a loved one with a disability. You can download it as a PDF file.
|Making Choices As We Age: A Peer Training Program|
A curriculum for training individuals with disabilities and their co-trainers how to teach other adults with developmental disabilities about choice-making, rights and responsibilities.
|Moving On Without Parents: Planning, Transitions and Sources of Support for Middle-Aged and Older Adults with Intellectual Disabilities|
This book is about planning for the care of adults with disabilities.
|Navigating Choice and Change in Later Life: Frameworks for Facilitating Person-Centered Planning|
This book is about choosing the living situation you want as you age.
|Older Adults with Developmental Disabilities and their Aging Family Caregivers|
A fact sheet that answers common questions about aging with a developmental disability.
|Older Adults with Developmental Disabilities: Optimizing Choice and Change|
textbook about supporting older adults with developmental disabilities
|People Planning Ahead: Communicating Healthcare and End-of-Life Wishes|
This workbook helps caregivers support someone through end of life issues.
|Person Centered Planning and Communication of End-Of-Life Wishes With People Who Have Developmental Disabilities |
This paper is about using person-centered planning with people who have disabilities and are nearing the end of their lives. It is available online.
|Person-Centered Planning for Later Life: A Curriculum for Adults with Mental Retardation|
This curriculum helps those with intellectual disabilities to actively plan for their later years.
|Person-Centred Thinking with Older People: 6 Essential Practices|
This book explains six practices used in person-centered thinking. It gives real-life examples of how to use them in the care of older people.
|Psychiatric Problems in Older Persons with Developmental Disabilities|
Book describing psychiatric problems in people with developmental disabilities as they age.
|Quality in Practice: End of Life Issues|
This fact sheet provides suggestions on how organizations can best support people with disabilities near the end-of-life.
|Simple Answers to Difficult Healthcare Questions - Choice|
This book helps people talk with doctors and nurses and make choices about health and medical care. There is information about planning ahead for the end-of-life.
|The Future is Now: A Future Planning Training Curriculum for Families and Their Adult Relatives with Developmental Disabilities|
This training curriculum gives families information about the future legal and financial issues for their adult relative.
|The Geese and the Peanut Butter Chocolate Ice Cream|
This book helps persons with disabilities and people who support them deal with death, loss and grief.
|The National Task Group on Intellectual Disabilities and Dementia Practices Consensus Recommendations for the Evaluation and Management of Dementia in Adults With Intellectual Disabilities|
This article has ideas about how to evaluate and manage dementia in adults with intellectual disabilities. You can read it online for free as a PDF file.
|The Toronto Declaration on Bridging Knowledge, Policy and Practice in Aging and Disability|
This article is about bringing together the systems that support people with disabilities with those that support people who are aging.
|Thinking Ahead: My Way, My Choice, My Life at the End|
A workbook to assist people in making decisions about the end of their life. There are also three videos about the guide you can watch online.
|Transition to Retirement: A Guide to Inclusive Practice|
This manual and DVD explain how to help people gradually build an active and socially inclusive retirement lifestyle.
|Understanding Health Experiences Of Women With Intellectual/Developmental Disabilities|
This book reviews the health concerns of women as they grow older. It is a Ph.D. dissertation.
|Women with Disabilities Aging Well|
This book is about women with developmental disabilities from around the world who handle the process of aging successfully.
|A Guide to Being A Companion Homemaker: Roles & Responsibilities DVD|
This DVD is about providing services to people in their homes. It focuses on the needs of older persons.
|Active Treatment of Dementia Associated with Down Syndrome|
This is a CD with information about aging persons who have Down Syndrome.
|Addressing Cognitive and Functional Decline|
This CD is about aging with intellectual disability.
|Aging and Disability|
This website has a lot of information about healthy aging, the process of dying, and supporting people who are grieving a loss. It was prepared by L'Arche Canada.
|Aging and Disability Website|
This website has information about aging as it affects people with intellectual disabilities.
|Aging with Autism: Defining the Future|
This is a series of DVDs about autism.
|Aging with Severe Mental Illness|
This CD is about aging for people who have both intellectual and mental illness disabilities.
|Alzheimer's and Down Syndrome|
Online resources that provide information about Alzheimer's Disease and Down syndrome.
This video tells the true story of Philly, a man with an intellectual disability. The story shows his parents failing health, and Philly's entry into the adult services system. There were two follow-up videos made about Philly and his sister.
|Bridging the Aging and Developmental Disabilities Service Networks: Challenges and Best Practices|
This report discusses how systems can work together to support older adults who have developmental disabilities.
In this video, a man named Burt gives a chronological history of his life and times, beginning in 1936 when he was 15 years old and living in a large institution. You can watch it online for free.
This online training module is about supporting people with disabilities who have dementia.
|Early Identification of Cognitive Decline in Persons with I/DD|
This CD teaches about the early signs of loss of cognitive ability.
|Future Care Planning: A Roadmap for Family Caregivers|
This book guides people through the steps of planning for the future. There are sections for family members and another for people with disabilities. There are many worksheets.
|Growing Older with A Developmental Disability: Physical and Cognitive Changes And Their Implications|
This webpage explains the changes that happen for people with disabilities as they grow older.
|Long Term Support for Individuals With Disabilities: Supporting Adults with Mental Retardation and/or Developmental Disabilities|
This document describes the service needs and barriers experienced by people with ID/DD in 2006. It was intended to help Aging and Disability Resource Centers better serve this population.
|National Goals in Research, Practice and Policy for and with People with Intellectual and Developmental Disabilities|
This webpage is a nice summary of the National Goals Conference that was held in 2015. There are many articles that can be downloaded, and video clips with researchers and persons with disabilities explaining the 10 areas focused on.
|Office of Disability, Aging, and Long-Term Care Policy (DALTCP)|
This office develops, analyzes and coordinates HHS policies and programs for persons with disabilities. It is part of the U.S. Department of Health and Human Services.
|Policy Video by Siblings on Future Planning|
This video shares the perspectives of siblings of people with disabilities. They discuss their views on the need for better future planning for their brothers and sisters.
|Practical Strategies for Working with Individuals with ID and Alzheimer's Disease|
This training video and workbook is directed to DSPs.
|Report on the State of Science on Health Risks and Aging in People with Intellectual Disabilities|
This paper summarizes all the research done on aging and people with intellectual disabilities done over the preceeding 15 years. It is written at a complex reading level.
|Retirement and Older Adults with Intellectual Disability|
This PowerPoint presentation shows a model to help people with disabilities retire. It was developed in Australia.
|Technical Assistance Exchange Issue Briefs|
These short documents guide states in planning and implementing programs for older adults with and without disabilities.
|The Family Life & Disability Series: Answers for people with disabilities & their families|
This website has ideas, and information about help available to people with disabilities at each stage in life. It is written to help Native American families.
|Update on Dementia and Developmental Disabilities: Emphasis on Down Syndrome|
This CD is about dementia and people who have Down syndrome.
|Update on Psychotropics and Elders with ID|
This CD is about perhaps not giving more medicine to older persons with intellectual disabilities along with changes in behavior.
|Wills, Trusts and Estates|
An on-line class to write a will and set up an estate. After you take the class, you'll be ready to meet with your lawyer to do this. Included: how to decide who to leave money to, setting up an account, and choosing who will carry out your wishes.