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Specialized Organizations
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Lists organizations with interests in and commitments to quality services for persons with developmental disabilities. Organizations are listed by topic area, with direct links to their Websites.

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Managed by: Webmaster of Research and Training Center on Community Living, University of Minnesota

Product Categories
Books, Publications & Reports (printed and/or online) (3 Products)
Electronic Media (14 Products)
Organizations, Programs, and Projects (91 Products)
Other (1 Products)


Books, Publications & Reports (printed and/or online)
Real Lives, Real Jobs: Stories of Successful Employment of Individuals with Developmental Disabilities
This booklet tells the stories of people with developmental disabilities who have found good jobs.
The Council on Quality and Leadership (CQL)
A system for accrediting agencies based on outcomes in the lives of people who receive services.
The International Journal of Disability, Community and Rehabilitation (IJDCR)
This online journal publishes research articles from around the world on the issues of people with disabilities. Anyone can read the articles online for free.
Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)
Archives of the National Information Center for Children and Youth with Disabilities
Until 2013, NICHCY was the national clearinghouse of information on disabilities and disability-related issues, with a special focus on children and youth (birth to age 22). It's archives are available online.
Center for Research on Women with Disabilities (CROWD)
Offers an array of materials related to violence and women with disabilities, including information on its prevalence, guidelines for clinicians, access to battered women's programs, interventions and research methods.
Directory of Centers for Independent Living
This interactive map helps people find Centers for Independent Living in their state.
Diversity Toolbox: Covering Disability Issues
This webpage has tips for reporters as they cover stories that include disability issues.
Institute on Community Integration (ICI), University of Minnesota website
The website for the Institute on Community Integration, University of Minnesota
Minnesota Association of Centers for Independent Living (MACIL)
MACIL is an organization dedicated to providing information about independent living and services available to Minnesotans that are provided by Minnesota's eight Centers for Independent Living (CILs).
National Fragile X Foundation
This is an organization for people interested in Fragile X syndrome.
Office of Disability, Aging, and Long-Term Care Policy (DALTCP)
This office develops, analyzes and coordinates HHS policies and programs for persons with disabilities. It is part of the U.S. Department of Health and Human Services.
Paul H. Brookes, Inc.
This is a publisher of many books about issues in support provision with people who have developmental disabilities
SpecialNeeds.com
This website has many resources for families with children with disabilities.
The Washington Initiative for Supported Employment
This organization works to create new job opportunities for people with intellectual disabilities in Washington State.
United Nations Enable
This website has information on what the United Nations is doing for persons with disabilities.
We Connect Now
This organization is for college students who have disabilities.
World Institute on Disability
An internationally recognized public policy center organized by and for people with disabilities. WIDís programs address employment, economic development and financial stability issues.
Organizations, Programs, and Projects
ABILITY Awareness
This corporation creates opportunities for people with disabilities to show their skills and talents as volunteers, mentors and employees.
Advocado Press
This publishing company has many books written by disability activists.
American Association on Health and Disability
This organization promotes health and wellness for persons with disabilities of all ages. It has a website with a lot of information.
American Network of Community Options and Resources (ANCOR)
ANCOR is the national association of private providers who offer services and supports to people with disabilities.
APSE (Association of People Supporting Employment First)
This organization focuses on ways to help people with disabilities get community-based jobs and advance in their careers.
Asset Based Community Development Institute (ABCD Institute)
This University-based Institute provides practical resources and tools for community builders. It shares the ideas of John L. McKnight and John Kretzmann.
Association for Talent Development
This is the world's leading professional association and resource on workplace learning and performance issues.
Association of University Centers on Disability (AUCD)
A national organization for the university centers which engage in research and education about a wide variety of disabilities issues.
Autism Asperger Publishing Company
This publishing company specializes in materials about autism spectrum disorders.
Autism Now
A national resource center on Autism.
Autism Research Institute
This research institute provides a variety of research, information and resources on autism for individuals, families and providers around the world.
Autism Society of America
This national organization is dedicated to increasing public awareness about autism. It provides information, education, and advocacy.
Autism Society of Minnesota
This organization provides social skills classes, therapists, trainings, education, and resources to Minnesotans on the spectrum and their families.
Autism Speaks
This national organization has three main purposes. It provides services, conducts research, and provides advocacy, all to make life better for people on the Autism spectrum.
BC Coalition of People with Disabilities
This organization provides advocacy information and services for people with disabilities.
Center for Autism and Related Disabilities
A university-affiliated resource center at the University at Albany (CARD - Albany) that brings research and practice together in community settings.
Center for Persons with Disabilities
This is Utah's University Center for Excellence in Developmental Disabilities. It is located at Utah State University.
Centers for Independent Living
This product is community centers that exist all around the United States, and World to assist persons with disabilities to leave institutions and live independently in the community. They are run by people with disabilities.
Centre for Disability Studies
The Centre for Disability Studies is a non profit organization in Sydney, Australia that provides information and research on disability.
Circles Network
This agency uses Circles of Support to help people who are isolated or at risk of isolation. It is located in the United Kingdom.
Collaboration to Promote Self-Determination
This is an advocacy network of 22 organizations. They are working to assure that all people with disabilities have the chance to work and save money.
Collaborative on Faith and Disability
This Collaborative brings together many researchers and others interested in supporting inclusive faith communities. Their website has many free, downloadable resources.
Community Education Network on Disability
This is a network of community education programs serving adults with disabilities in Minnesota.
Consortium for Citizens with Disabilities (CCD)
An organization based in Washington, DC that coordinates efforts among many disability advocacy organizations.
Denver Metro Community Parent Resource Center
This organization supports parents from under-represented groups in understanding their child's disability. It provides them with information so they can become stronger advocates.
Developmental Disabilities Nurses Association
This association provides education, support, and advocacy for nurses who support persons with intellectual and developmental disabilities.
Developmental Disabilities Training Institute
This agency provides training on Person-Centered Thinking and other topics. It is located in North Carolina
EAD & Associates, LLC
This agency helps state and local emergency management systems include the needs of people with disabilities in their plans. They also provide training for provider agencies and people with disabilities.
Empowerment Network Unlimited, Inc.
This organization provides training, assistance with grant writing, and other services to help those supporting people with disabilities.
Epilepsy Foundation
The Epilepsy Foundation is a national, charitable organization, founded in 1968 as the Epilepsy Foundation of America that is dedicated to the welfare of people with epilepsy.
Fanlight Productions
This organization is a leading distributor of new film and video works on the social issues of our time. They have many films on people with disabilities.
Future Horizons, INC.
This publishing organization shares information about Autism. It also provides workshops, and has a magazine.
Global Down Syndrome Foundation
An organization that seeks to improve the lives of people with Down syndrome through research, medical care, education and advocacy.
Good Life Networks
This family-led initiative helps people with disabilities create friendships and relationships in the community. It is located in Cincinnati, Ohio.
Inclusion Research Institute
A research and information center that shares ideas about recent innovations promoting the inclusion of persons with disabilities in all types of settings.
Melwood
This service provider in Washington D.C. does a great job helping people find community jobs.
Minnesota Association of Centers for Independent Living (MACIL)
MACIL is an organization dedicated to providing information about independent living and services available to Minnesotans that are provided by Minnesota's eight Centers for Independent Living (CILs).
Minnesota State Council on Disability
The Minnesota State Council on Disability is an organization that advocates on behalf of people with disabilities. They also advocate to the state legislature for this group as a whole.
Museum of disAbility History
Museum in Buffalo, New York with a collection of disability history.
National Alliance for Direct Support Professionals (NADSP)
A national organization of direct support professionals (DSPs) in the United States. It helps DSPs in many ways, such as providing trainings and helping DSPs connect with each other.
National Alliance on Mental Illness
This organization advocates and educates across the US to help people with mental health disabilities.
National Association for Down Syndrome
This organization is for individuals with down sydrome and their families.
National Association of Councils on Developmental Disabilities
This association supports and assists the 56 individual Councils on Developmental Disabilities around the United States.
National Association of Developmental Disabilities Councils
An association representing the 54 State and Territorial Councils on Developmental Disabilities.
National Association of State Directors of Developmental Disabilities
Association of state developmental disabilities agencies
National Center for Accessible Media
This organization works to make sure that media and technology is fully accessible to people with disabilities.
National Center on Disability and Journalism
This organization provides support and guidance for reporters as they cover news about people with disabilities.
National Disability Institute
The mission of this Institute is to build a better economic future for Americans with disabilities.
National Disability Rights Network
The National Disability Rights Network (NDRN) is the nonprofit membership organization for the federally mandated Protection and Advocacy (P&A) Systems and Client Assistance Programs (CAP) for individuals with disabilities.
National Down Syndrome Congress
This organization promotes the interests of persons with Down syndrome and their families. It does this through advocacy, public awareness, and information dissemination on all aspects of Down syndrome.
National Down Syndrome Society
A national organization for persons with Down Syndrome and their families
National Fragile X Foundation
This is an organization for people interested in Fragile X syndrome.
National Organization on Disability (NOD)
The mission of The National Organization on Disability (N.O.D.) is to expand the participation and contribution of Americaís 54 million men, women and children with disabilities in all aspects of life.
National Resource Center on ADHD
This organization shares for and about people with ADHD. They have a great website and an office near Washington, D.C.
New York State Developmental Disabilities Planning Council (DDPC)
The DD council for New York state. It seeks to improve the lives of people with disabilities in New York in the areas of community involvement, employment, recreation and housing.
Peak Parent Center
An organization especially for family members of persons with developmental disabilities that offers many publications and information
Project SEARCH
This program helps students with intellectual and developmental disabilities transition from school to work with training.
Pueblo Developmental Disabilities/Mental Health Consortium
This program seeks to prevent persons from becoming involved in the criminal justice system.
Pyramid Inc. Art Program
This employment provider offers arts program for adults with developmental disabilities. They have classes in visual and performing arts, as well as computers and nutrition.
Quality Trust
This agency provides advocacy services for people with developmental disabilities in Washington DC.
Real Communities
This program supports grassroots efforts at inclusion in the state of Georgia.
Realistic Reflections
This company sells images of people with disabilities in everyday life. The photos show people with disabilities, at work, at play, and with friends.
Reinventing Quality Conference
This national conference shares the best of what is happening in services for people with disabilities. It happens every two years and attracts a wide variety of audiences.
Rocky Mountain Down Syndrome Association
This organization provides support, educational events, and social events for people with Down syndrome and their families.
Selective Mutism Foundation
This organization advocates for those who cannot speak in social settings. This disability makes it difficult to do things like have friends, go to school, and have a job.
Sibling Leadership Network
This is a national organization that helps siblings of people with disabilities find information and support.
Spectrum Press
This company provides person-centered resources for those who support people with disabilities.
TASH
TASH is a professional organization that advocates for the full rights of people with disabilities.
Technical Assistance and Continuing Education Centers
These regional Centers provide support to state Vocational Rehabilitation agencies and their community partners.
The American Association on Intellectual and Developmental Disabilities (AAIDD)
AAIDD is the oldest and largest organization of professionals interested in developmental disabilities. AAIDD is known for high quality publications, and national and regional conference that bring together people interested in developmental disabilities.
The Arc
The Arc of the United States is an organization that advocates for people with intellectual and developmental disabilities.
The Burton Blatt Institute (BBI)
This university center does research and outreach to promote the civic, economic, and social participation of people with disabilities around the world.
The Center on Human Policy (UCEDD)
This is a policy, research, and advocacy organization involved in the national movement to insure the rights of people with disabilities.
The Cerebral Palsy Group
This is a national network of people who have cerebral palsy.
The Council on Quality and Leadership (CQL)
A system for accrediting agencies based on outcomes in the lives of people who receive services.
The HSC Foundation
An organization that works to improve services for youth and young adults with disabilities and chronic illness.
The Inclusion Network Toronto Summer Institute
This annual conference is held in Toronto. It provides classes, seminars and activities about community inclusion and person-centered planning.
The International Society for Augmentative and Alternative Communication (ISAAC)
This is an organization that works to improve the lives of people who use Augmentative and Alternative Communication (AAC). It works in countries all around the world.
The IOD Bookstore
An online bookstore from the University of New Hampshire Institute on Disability (UCEDD). There are many resources available for free or at a very low cost.
The National Association of QDDPs
This membership organization has resources for those who manage programs. It holds an annual conference and has a training program.
The National Council on Independent Living (NCIL)
A national organization run by and for people with disabilities. It works to advance independent living and the rights of people with disabilities in the United States.
The National Leadership Consortium
This Center develops the future national leaders who will assure people with disabilities receive quality services and live quality lives.
The President's Committee for People with Intellectual Disabilities
An advisory committee to the President of the United States on issues of people who have intellectual disabilities.
The Washington Initiative for Supported Employment
This organization works to create new job opportunities for people with intellectual disabilities in Washington State.
Training Resource Network
This company offers online training, as well as a few downloadable resources to encourage quality employment and full community inclusion for persons with developmental disabilities.
United Cerebral Palsy (UCP)
The website of United Cerebral Palsy (UCP), a national advocacy organization. This website includes background information about UCP, and also much news about national news affecting persons with cerebral palsy and other developmental disabilities.
We Connect Now
This organization is for college students who have disabilities.
Women With Disabilities Australia
This Australian organization is run by and for women with disabilities. Its website has many articles and networking opportunities.
World Institute on Disability
An internationally recognized public policy center organized by and for people with disabilities. WIDís programs address employment, economic development and financial stability issues.
YAI Network
This is a network of eight service providers in New York and New Jersey that support people with intellectual and/or other developmental disabilities.
Youth Transitions Collaborative
This is a partnership of several regional and national organizations. All are focused on supporting youth who have disabilities with transitions to independence.
Other
Woodbine House
Woodbine House is a publishing company that has books about people with disabilities and also about special health needs.


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This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu.
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