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Topical Websites

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Summaries of useful websites that contain information on topics of importance to person-centered services. Websites are organized by topic, with direct links to all sites provided.

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Product Categories
Books, Publications & Reports (printed and/or online) (14 Products)
Electronic Media (114 Products)
Organizations, Programs, and Projects (42 Products)
Online Forums (5 Products)
Other (3 Products)

Books, Publications & Reports (printed and/or online)

	2012 National Transition Conference Resources: College and Careers for Youth with Disabilities This conference was about transition options for students with disabilities. All of the materials are available online.
	Capacity Works Capacity Works creates books, worksheet kits and posters for facilitators of person-centered planning meetings. The material is also helpful for the people with disabilities, family members and other support circle members.
	Crisis Management and Working with the Media Crisis Management and Working with the Media is designed to help human service providers prepare for, respond to and recover from dangerous, tragic or embarrassing situations. The premise is that anticipation and preparation offer the luxury of effective
	Direct Support Professional Resource Guides Eleven resource guides for Direct Support Professionals (DSPs) who work in group homes.
	Out of Reach Out of Reach is a report that compares wages and rents for housing throughout the United States.
	Pursuing Postsecondary Education Opportunities for Individuals with Disabilities A guide for people with disabilities and families about choosing and attending the right university, community college, or technical college.
	Research on People with MR/DD based on the National Health Interview Survey - Disability Supplements This web-site has solid, wide ranging information about people with intellectual disabilities (formerly mental retardation) or developmental disabilities that is based on analyzing special census data
	Scoop Essentials: Disclosing Disability, Tackling a Dicey Proposition This article gives ideas on when, and how to talk about a family member's disability.
	Self-Advocacy for Students with Learning Disabilities Self-Advocacy for Students with Learning Disabilities gives concrete advice to students, parents and counselors about how to select and gain acceptance to college, and how to succeed once the student is enrolled.
	The IOD Bookstore An online bookstore from the University of New Hampshire Institute on Disability (UCEDD). There are many resources available for free or at a very low cost.
	The Right People for the Job (direct support tool) This brief gives the basic information on how to recruit, assess, and select DSPs.
	Through Asking the Right Questions . . . You Can Reach Your Destination A guide that provides information about what to ask different service providers, what to look for when visiting homes, and comparing service providers.
	Vocabulary Tips: Positive Language Empowers This fact sheet shows positive phrases to use when talking about disability.
	Watch Your Language! Tips for the media regarding people with disabilities This fact sheet talks about the right language to use when talking about disability.

Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)

	"Show Me the Money": Flexible Funding for Job Success This website is intended to help people use flexible funding to find and keep the jobs they want. Flexible funding is one part of self-determination.
	2009 Monthly Data Series on the Employment Status of People with a Disability A website from the United States Bureau of Labor Statistics. It has data from a population survey on the employment status of people with a disability in the U.S.
	About Disability: A Resource for the Disability Community This topical website offers a number of links to articles written about technology, disability culture, and health. It also has several documents that refer to historic disability issues.
	About Quality - Mosaic's on-line e-learning course This online "About Quality" course introduces the user to internal quality assurance, accreditation, and quality enhancement plans.
	ADA Building Blocks: web-course The ADA Basic Building Blocks is an introductory web course that explores the legal requirements and the spirit of the ADA.
	Addup.org Addup.org is an online resource with information about the many projects and programs of the Administration on Developmental Disabilities.
	Assistive Technology Literature Database The Assistive Technology Literature Database provides a very complete listing of research that has been done about the technologies being used by persons with intellectual and developmental disabilities.
	Australian Center on Quality of Life A web site where people can learn about quality of life and people with disabilities. The web site is especially for researchers and university students who want to investigate this interesting area, but everyone is welcome to come and take a look.
	Autism Asperger Publishing Company This website has materials about autism spectrum disorders.
	Autism Hangout An online resource that compiles news, knowledge and personal experiences on how best to thrive with autism.
	Autism Research Institute This research institute provides a variety of research, information and resources on autism for individuals, families and providers around the world.
	Autism.Lovetoknow.com This is a website about many aspects of autism. On the website are articles related to current information involving autism.
	AutismAsperger.net A website that seeks to build awareness of the autism spectrum.
	Bill and Dave's Corner This is a page on the CIRCL web site used to post program designs, employment agreements, and job descriptions for supported living services. It is named after Bill Silverberg and Dave Denniston.
	Career Connections Career Connections is a website where job seekers can look for jobs supporting persons with developmental disabilities, and employers can post job openings. The web-site is nationwide, and is hosted by the American Association on Mental Retardation.
	CAVNET Communities Against Violence Network is an international network of experts and advocates working in the areas of domestic violence, stalking, and sexual assault.
	Center for Research on Women with Disabilities (CROWD) Offers an array of materials related to violence and women with disabilities, including information on its prevalence, guidelines for clinicians, access to battered women's programs, interventions and research methods.
	Coleman Institute Assistive Technology Literature Database The Assistive Technology Literature Database is a website with lots of information on the use of technology by people with intellectual disabilities. It contains summaries of research articles, and users can search for the kind of information they need.
	College of Direct Support This college has many on-line training opportunities for people who provide direct support to individuals with developmental disabilities.
	College of Frontline Supervision and Management The College of Frontline Supervision and Management(CFSM) is a self-paced training program offered over the Web. It is now part of the College of Direct Support. It helps supervisors and others learn more about recruitment and retention issues.
	ConnectABILITY Website A website for people with a developmental disability and their support networks. It has information about many different topics.
	CT Health Jobs CT Health Jobs (www.cthealthjobs.org) is an Internet-based recruiting tool for direct support professionals.
	Direct Support Professional Workforce Website Web site describing research projects, training materials and resources for Direct Support Professionals, Frontline Supervisors and the individuals and organizations who employ them.
	Disabilities Education Blog This weblog shares articles, facts and advice. It covers a wide variety of subjects, all related to the needs of children, youth, and adults with disabilities.
	Disability Culture Watch This blog looks at how people with disabilities have appeared in cultures, their arts and media. It shows both positive and negative ways that people with disabilities have been presented in popular culture.
	Disability History Museum A website with all kinds of information on the history of people with disabilities in America.
	Disability Nation An audio magazine by and for people with disabilities. It provides the latest news on disability issues in a magazine format. It is available on the web and select radio reading services across the United States.
	Disability Resource Library A website with many books, videos, and training materials on topics of interest to persons with developmental disabilities and those who care about them.
	Disability World A bimonthly web-zine of intenational disability news and views.
	Disability.gov A one-stop shopping website that pulls together information about topics related to disability from across the federal government.
	DisabilityTimes.com On-line source for news, information, opinion and a forum for debate on every subject of interest to the disability community
	DisabilityTraining.org The goal of this web site is to advertise and encourage training and education to build supportive communities for Iowans with disabilities.
	Disabled Women on the Web Website providing information, resources, and support for women with disabilities.
	Disaster Preparedness for People with Disabilities (DisabilityResources.org) A summary of disability-related disaster preparedness information available on the web.
	Disaster Preparedness Resources for People with Disabilities A web site with disaster information for people with disabilities
	Discover Camp! A website for families preparing to select a summer camp for their child with disabilities.
	District of Columbia activities web-site To help integrate Washington, DC's residents with disabilities into the city's cultural life, MRDDA's website presents activities, events, and destinations as individually designed "invitations" along with access information.
	Diversity World (Website) Diversity World is focused on enriching workplaces and reducing employment barriers. It has helpful content and products to support the employment of people with disabilities.
	Down Syndrome: For New Parents This web site is for new parents of children with Down Syndrome.
	DownSyndrome.com This website gives parents who have a child with Down syndrome and others a place to share thoughts and make friends.
	EARN (Employer Assistance and Resource Network) This Center shares ideas with employers on how to recruit, hire and manage people with disabilities. It's website is well organized and has a lot of information
	El Peecho's Pennhurst Page This is a website dedicated to the former residents of the Pennhurst State School in Pennsylvania. It includes a good amount of information on Pennhurst, including first-hand accounts of what went on at the institution.
	Freedom Clearinghouse Web Site A web site offering information on community-based services for persons with disabilities.
	Global Disability Rights Library A website that has resources for disability advocates relating to the United Nation's Convention on the Rights of Persons with Disabilities.
	Grants.gov Grants.gov is a simple, unified “storefront” for all customers of Federal grants to find, apply for, and manage grants electronically.
	HEATH Resource Center HEATH Resource Center: Online Clearinghouse on Postsecondary Education for Individuals With Disabilities offers a breadth of information for students with disabilities who are transitioning into postsecondary education or are already there.
	High Tide Press & Cherry Hill Bookstore A publisher of fascinating books in many leading-edge areas
	Ideal Lives Project Ideal Lives is a web research and consultation service that specializes in practical information on products and services for parents and professionals on many disability-related topics.
	ilivewithadisability.com A social networking website of people who have disabilities.
	Illinois Life Span Project A central source of information about services available to persons with developmental disabilities in the state of Illinois.
	Illinois Voices Illinois Voices is a statewide initiative designed to empower people with developmental disabilities to make changes in their lives and the systems which support them.
	Inclusive Fitness Coalition This website is a coalition of agencies. The agencies are committed to good health and self advocacy in the lives of people with disabilities.
	Information Bulletin on Accessible Housing and the ADA An on-line news bulletin on accessible housing for people with disabilities.
	Institute for Community Inclusion website A website of the Institute for Community Inclusion at Children's Hospital, Harvard
	Institute on Community Integration, University of Minnesota website The website for the Institute on Community Integration, University of Minnesota
	Institute on Disability Culture Website This website supports and promotes culture within the disability world. It aims to help people with disabilities claim their own cultural identity.
	Intellectual Disability, Pervasive Developmental Disorders and Intersectorality Website A partnership in Canada between researchers and service providers to people with disabilities. These groups work together to learn new ideas about providing better services. They then offer training and write papers about the things they have learned.
	Iowa Training Consortium: Disability Training.org This is a disability and training website offering information on disability-related events and resources.
	Issues in Developmental Disabilities An internet-based distance education course offered by the University of Wisconsin-Madison
	J.P. Das Developmental Disabilities Centre's Website on Violence, Abuse, and Disability A website with information explaining policies and resources in Canada to prevent violence and abuse against persons with disabilities.
	Karin Melberg Schwier Website A site featuring Karin Melberg Schwier. Karin is the parent of a person with an intellectual disability, an author, a blogger and more.
	Laws.com Laws.com is a website that offers information on state and federal laws about social justice issues like domestic violence, sexual assault, and child abuse.
	Leadership in the History of the Developmental Disabilities Movement A multimedia, wiki website on leadership in the history of the developmental disabilities movement.
	LifePages.org A web site with information about recreation and leisure activities, services, advocacy, and other useful things to persons with disabilities who live in Minnesota.
	Making Your Case Internet-based learning program supporting advocacy by and for people with disabilities.
	Making Your Case An online course designed to help families and people with disabilities learn about communicating with public officials to advocate for positive change for people with disabilities.
	Marlaina by Ear Marlaina by Ear is an audio program for people who are blind, podcast over the Internet.
	Marriage and Disability (disaboom.com) A section on the Disaboom.com web site. It talks about marriage and people with disabilities.
	Mass Media and Disability Links This website provides links to disability-related media.
	Media and Disability Interest Group of the Association of Educators in Journalism and Mass Communication This website offers information to journalism professionals, educators and students of journalism on mass communication disability-related issues.
	Medline Plus website with health information
	Meet the Future Face of Employment, Individuals with Autism Spectrum Disorder in Technology Fields This website is about matching people with Autism Spectrum Disorder to jobs in the field of technology.
	Minnesota Center Against Violence and Abuse A web-based clearinghouse of information about violence
	National Center for the Dissemination of Disability Research (NCDDR) Highlights of the research and research outcomes of grantees funded by the National Institute on Disability and Rehabilitation Research (NIDRR).
	National FindFamily Registry This web site helps families of people with disabilities who are separated find each other.
	National Gateway to Self-Determination website A website with information and resources about self-determination and people with intellectual disabilities.
	National Joint Committee on the Communication Needs of Persons with Severe Disabilities This website provides materials, references, and links about communication services and supports for children and adults with severe disabilities. It includes a series of FAQs about communication development, assessment, and intervention.
	National Rehabilitation Information Center Information about all of the many research and demonstration projects funded by the National Institute on Disability and Rehabilitation Research (NIDRR) over the past 10 years in an accessible format.
	Not Dead Yet Disability activists opposed to the legalization of assisted suicide and euthanasia.
	Ohio County Board of MR/DD Internet Orientation Program A convenient, standardized, flexible, and web-based training is intended for employees of Ohio County Boards of Mental Retardation and Developmental Disabilities (OCBMR/DD) This curriculum is used by staff working in the areas of adult services, case man
	ONET OnLine - Occupational Information Network ONET is the US Department of Labor's online Occupational Information Network.
	Ouch!, It's a disability thing! A website that explains popular culture, and disability culture through the eyes of people with disabilities. It has articles, blogs, a very busy messageboard and an award-winning radio show - The Ouch Podcast. "Ouch!" is from the BBC
	Our-Kids Listserv An essential e-mail list for families of children with disabilities
	Parents with Disabilities This is a set of news articles about being a parent who has a disability.
	Parents with Disabilities Online Information, support and resources to parents with disabilities.
	Paul H. Brookes, Inc. This is a publisher of many books about issues in support provision with people who have developmental disabilities
	Philia.ca website A web-site committed to full citizenship and community inclusion for people with developmental disabilities.
	Robert Perske: Street-Court-Prison Worker and Advocate This website is about the work of Robert and Martha Perske. Robert has spent many years advocating for people with disabilities caught in the criminal justice system.
	SB University (SBU) A website with online training about important topics in the Spina Bifida Community.
	Selective Mutism Foundation Website To promote further research, advocacy, social acceptance, and the understanding of Selective Mutism as a debilitating disorder.
	Sexuality and Disability Webliography: Developmental Disabilities A web-based reference to help meet the sex education needs of individuals with disabilities.
	State Health Facts Online A website with health care coverage availability information for all 50 states.
	Susan's Sex Support Site This is a website with information about sexuality and sex and people with disabilities. It includes information useful to both self-advocates, and to their allies.
	The Arc Legislative Action Center Up-to-date information about federal and state legislation affecting people with developmental disabilities
	The ARC Link "TheArcLink" provides information on services and other resources for people with developmental disabilities and their families. Details about TheArcLink's future are listed in the full description.
	The Disability Resource A publisher on topics related to person-centered services and people with disabilities.
	The Disability Rights and Independent Living Movement website Website on disability rights and the Independent Living movement.
	The Illinois Direct Support Professional Workforce Initiative Project Web Site This initiative was intended to improve recruitment and retention of Direct Support Professionals in Illinois.
	The IOD Bookstore An online bookstore from the University of New Hampshire Institute on Disability (UCEDD). There are many resources available for free or at a very low cost.
	The National Resource Center on Supported Living and Choice A website that provides information on research papers and articles related to supported living, inclusion, disability studies, disability rights, and advocacy, and links to other major disability websites.
	The Safety Net DDS Safety Net is a compendium of tools and articles on risk and risk management. It is designed for consumers with developmental disabilities and their families, and for staff and providers.
	Think Beyond the Label An advertising campaign making the business case for employing people with disabilities.
	THOMAS A website that includes full copies of United States Laws and proceedings of Congress from throughout history.
	THOMAS World Wide Web THOMAS is a website that offers information and regular updates on Federal legislative issues in the United States.
	U.S. General Accounting Office The General Accounting Office prepares comprehensive reports on many issues for use by members of the United States Congress. These reports are generally available to the public.
	Virginia Commonwealth University (VCU) RRTC Live Webcast Series A series of presentations about employment issues and people with disabilities. There is a schedule of upcoming presentations you can attend on the internet. There are many that have already been held but you can watch on the internet anytime.
	Web Calendar of Disability Related Events Web Calendar of Disability Related Events: Online Events, International Events, National Events and Events in Illinois. Free publishing for any event that is relevant to a disabled community and disabled community research.
	Web-Zine of the International Disability Exchanges and Studies (IDEAS) Project A web-based magazine with articles, news, and book reviews on legislation, independent living, employment, media and the arts, women, children and youth.
	Women Living With Disabilities This web site has many topics that are helpful for women with disabilities.
	Workforce.com Workforce.com is a website containing resources for supervisors, managers and administrators on human resource issues.
	Wrightslaw Wrightslaw offers up-to-date information about special education law and advocacy for children with disabilities. This website offers articles, cases, newsletters, and resources about dozens of topics in the Advocacy Libraries and Law Libraries.
	www.bioethicsanddisability.org This web site helps to inform disabled people about bioethics issues and helps to inform non-disabled people about a disability rights angle to the issues.
	www.rewardingwork.org People with disabilities, elders and families connect with PCAs at www.rewardingwork.org. This web-based service helps individuals maintain choice and control in hiring, and is available in five states. Each state tailors information to suit its needs.
	www.SelfAdvocateNet.com An interactive, global website for people with intellectual disabilities and their supporters.

Organizations, Programs, and Projects

	"Show Me the Money": Flexible Funding for Job Success This website is intended to help people use flexible funding to find and keep the jobs they want. Flexible funding is one part of self-determination.
	2009 Monthly Data Series on the Employment Status of People with a Disability A website from the United States Bureau of Labor Statistics. It has data from a population survey on the employment status of people with a disability in the U.S.
	Advocating Change Together ACT is a self-advocacy organization run by and for persons with developmental and other disabilities.
	Alliance for Full Participation A formal partnership of leading organizations serving the developmental disabilities field that share a common vision. Its intention is to help create a better and more fulfilling quality of life for people with developmental disabilities.
	Asset Based Community Development Institute (ABCD Institute) The Asset-Based Community Development Institute is built upon decades of community development research by John Kretzmann and John L. McKnight. Practical resources and tools for community builders to identify, nurture, and mobilize neighborhood assets.
	Autism and Developmental Disabilities Monitoring (ADDM) Network This initiative keeps track of how many children have autism spectrum disorders in different parts of the country. It keeps track of other disabilities too.
	Autism Now A national resource center on Autism.
	Autism Research Institute This research institute provides a variety of research, information and resources on autism for individuals, families and providers around the world.
	Autism Speaks An organization which funds research into the causes, prevention, treatments, and cure for autism, and is committed to raising public awareness about autism
	CAST--Center for Applied Special Technology CAST is a not-for-profit organization whose mission is to expand educational opportunities for individuals with disabilities through the development and innovative uses of technology.
	Center for Personal Assistance Services The Center for Personal Assistance Services (PAS) provides the latest research and news for, and about the DSPs who help people at home and in the community.
	Center for the Study and Advancement of Disability Policy (CSADP) The Center for the Study and Advancement of Disability Policy (CSADP) provides information, training, and technical assistance on public policy issues affecting individuals with disabilities and their families (taken from CSADP website).
	Disability is Natural This organization is all about creating new and positive ways of thinking about people with disabilities. It has a website, book, video, newsletter, and much more.
	EARN (Employer Assistance and Resource Network) This Center shares ideas with employers on how to recruit, hire and manage people with disabilities. It's website is well organized and has a lot of information
	Family Voices Clearinghouse for information concerning the health care of children with special health needs.
	Fetal Alcohol and Drug Unit A research unit on Fetal Alcohol Syndrome.
	Home and Community-Based Services Resource Network The Home and Community Based Resource Network brings together the federal government, states, and persons with disabilities of all ages to expand access to high-quality, consumer-directed services in a cost-effective manner.
	Illinois Life Span Project A central source of information about services available to persons with developmental disabilities in the state of Illinois.
	Inclusive Fitness Coalition This website is a coalition of agencies. The agencies are committed to good health and self advocacy in the lives of people with disabilities.
	Institute on Disability Culture Promotes pride in the history, activities, and identity of people with disabilities.
	Intellectual Disability, Pervasive Developmental Disorders and Intersectorality Website A partnership in Canada between researchers and service providers to people with disabilities. These groups work together to learn new ideas about providing better services. They then offer training and write papers about the things they have learned.
	Making Your Case An online course designed to help families and people with disabilities learn about communicating with public officials to advocate for positive change for people with disabilities.
	Media and Disability Interest Group of the Association of Educators in Journalism and Mass Communication This website offers information to journalism professionals, educators and students of journalism on mass communication disability-related issues.
	Mothers From Hell 2 (MFH2) MFH2 is a national group of parents, relatives, friends, and anyone who just plain 'gets it' fighting for individuals with disabilities.
	National Arts and Disability Center A national information center on the arts, and people with disabilities
	National Center for Family Support The National Center for Family Support is a good source of training and technical assistance on family support. GO TO THE WEB to access information and many resources about family support.
	National Coalition on Self-Determination The National Coalition on Self-Determination has been launched
	National FindFamily Registry This web site helps families of people with disabilities who are separated find each other.
	Not Dead Yet Disability activists opposed to the legalization of assisted suicide and euthanasia.
	Office for Victims of Crime Resource Center Office for Victims of Crime Resource Center is a primary source for crime victim information.
	Project C3 (Conecting Youth to Communities and Careers) This program helps improve postsecondary outcomes for students
	SB University (SBU) A website with online training about important topics in the Spina Bifida Community.
	Spectrum Training Systems, Inc. Autism Bookstore A bookstore that sells books about many different topics related to autism. Books can be ordered and purchased online.
	STEPS Forward This program helps students with intellectual disabilities go to college. It was started by parents, and is located in British Columbia.
	The American Association of People with Disabilities (AAPD) An organization that advocates for equal opportunities and rights for people with disabilities.
	The Illinois Direct Support Professional Workforce Initiative Project Web Site This initiative was intended to improve recruitment and retention of Direct Support Professionals in Illinois.
	The IOD Bookstore An online bookstore from the University of New Hampshire Institute on Disability (UCEDD). There are many resources available for free or at a very low cost.
	The National Center on Physical Activity and Disability A national clearinghouse on physical activity for persons with disabilities
	United Cerebral Palsy (UCP) The website of United Cerebral Palsy (UCP), a national advocacy organization. This website includes background information about UCP, and also much news about national news affecting persons with cerebral palsy and other developmental disabilities.
	Web Site for T.A. Alliance for Parent Centers A website with information about all of the Parent Training and Information Centers in the United States
	Webby Talents A site offering an online service for sharing and watching videos made by or for persons with disabilities.
	Wrightslaw Wrightslaw offers up-to-date information about special education law and advocacy for children with disabilities. This website offers articles, cases, newsletters, and resources about dozens of topics in the Advocacy Libraries and Law Libraries.

Online Forums

	DownSyndrome.com This website gives parents who have a child with Down syndrome and others a place to share thoughts and make friends.
	El Peecho's Pennhurst Page This is a website dedicated to the former residents of the Pennhurst State School in Pennsylvania. It includes a good amount of information on Pennhurst, including first-hand accounts of what went on at the institution.
	Scoop Essentials: Disclosing Disability, Tackling a Dicey Proposition This article gives ideas on when, and how to talk about a family member's disability.
	Virginia Commonwealth University (VCU) RRTC Live Webcast Series A series of presentations about employment issues and people with disabilities. There is a schedule of upcoming presentations you can attend on the internet. There are many that have already been held but you can watch on the internet anytime.
	www.caringforlauren.com A blog written by the mother of Lauren, a young person with multiple disabilities. It shares the struggles and joys of caring for Lauren. It also discusses self-direction from the caregiver viewpoint.

Other

	Realistic Reflections A minority owned business offering a different type of “stock photography." Our images are of people with disabilities in everyday life. The photos show people with disabilities, at work, at play, and with friends.
	The Arc Online Legislative Action Center Interactive legislative online action center to contact Congress.
	Woodbine House Woodbine House is a publishing company that has books about people with disabilities and also about special health needs.

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