Quality Mall Department: State and Local Initiatives
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State and Local Initiatives
  >>Located in Store(s): Systems Change Shop

This department will include products describing state and local community initiatives aimed at making significant changes to embrace and reflect the principles of person-centered supports. These products might include broad-scale state and local system change/reform initiatives, government program redesign efforts and partnerships among stakeholders to promote person-centered support principles.

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Managed by: Barbara Brent (bbrent@nasddds.org) of National Association of State Directors of Developmental Disabilities Services

Product Categories
Books, Publications & Reports (printed and/or online) (35 Products)
Electronic Media (15 Products)
Organizations, Programs, and Projects (23 Products)
Other (3 Products)
People Who Can Help (2 Products)


Books, Publications & Reports (printed and/or online)
A Better Bottom Line: Employing People with Disabilities Blueprint for Governors
This report proposes what state governments need to do to increase employment among people with disabilities.
Aging and Disability Information and Referral/Assistance Networks: Challenges and Opportunities
A report of a 2012 survey of state aging and disability information and referral/assistance organizations. It describes the services provided by these organizations and presents four major themes from the survey.
Alaska Service Principles
Alaska has nine service principles to assure quality in community services. Funding is tied to these principles for each consumer. If the consumer is not satisfied, funding is not released to an agency. These principles are the foundation of all services.
AT Act Data Briefs: Using AT Act data to understand, plan, and improve programs
These short reports show how states are making assistive technology accessible for all people with disabilities.
Becoming a Person Centered System
This report explains a systems change initiative. It begins with training DSPs in Person Centered Planning, and leads to changes in how both agencies and service systems do their work. Full text available as a PDF file.
Biding time: Can Maine shorten its waitlists for disabled residents seeking support services?
This newspaper article describes the need for more home and community-based service openings for people with disabilities living in Maine.
Developing Provider Networks for Medicaid Managed Long-Term Services and Supports Programs: Considerations for States
This brief is about making sure Medicaid managed care programs are able to meet the needs of vulnerable populations, such as people who have disabilities.
Expanding Specialized Transportation: New Opportunities under the Affordable Care Act
This report is about using Affordable Care Act funding to provide transportation for older people and adults with disabilities. Information is provided online, through a web blog, podcast, or policy paper.
Filthy Lucre: Creating Better Value in Long Term Supports
This seminal article discusses issues of rate-setting and person-centered budgeting in support of self-determination
Forging a Partnership: Dane County, Wisconsin
An overview of systems change occurring in Dane County, Wisconsin designed to promote self-determination.
Guidance to States using 1115 Demonstrations or 1915(b) Waivers for Managed Long Term Services and Supports Programs
This document provides best practices guidance to states who are beginning to use a managed care model to provide long-term care services.
Having It Your Way: Understanding State Individual Budgeting Practices: NASDDS Individual Budgeting Study
This report summarizes the results of a study of state individual budget development practices conducted by the National Association of State Directors of Developmental Disabilities Services (NASDDDS).
How is the Affordable Care Act Leading to Changes in Medicaid Today? State Adoption of Five New Options
This article talks about health reform and changes to Medicaid.
How Managed Long-Term Services and Supports is Providing Coordination
This report looks at how different states are including care coordination in their managed care Long Term Services and Supports.
Illinois Guardianship Reform Project
This report looked at the guardianship system in Illinois and found some problems. The report also suggested ways to fix them.
Linking Youth Transition Support Services: Results from Two Demonstration Projects
This research article describes two projects intended to help older youth with disabilities access adult services and supports.
Managed Care Options for Medicaid Long-Term Services and Supports
This primer explains three of the options states have when using managed care to provide long-term services and supports.
Medicaid Innovations— Meeting Summary Report
This report summarizes a 2012 meeting in which state Medcaid directors asked for help from the Feds in managing their costs.
National Goals for People with Intellectual and Developmental Disabilities
This book comes out of a federal conference that was held in 2003. It describes the current knowledge and national goals in areas that affect the lives of people with developmental disabilities in the United States.
Olmstead Progress Report: Disability Advocates Assess Olmstead Implementation After Two Years
This report explains how states were using federal funds to implement the Olmstead decision three years after it was passed.
Out of the Darkness and into the Light: Nebraska's Experience with Mental Retardation
A book about Nebraska's model for community living for persons with intellectual disabilities.
Person-Centered Supports -- How Do States Make Them Work?
This report is a summary of an evaluation of person-centered practices in four leading states. You can download it as a PDF.
Privatization of Welfare Services: A Review of the Literature
This report reviews the shift in welfare and related services from public to private agencies.
Promising Practices in HCBS: Massachusetts- Recruiting Direct Service Professionals in a Competitive Environment
This article describes a collaborative effort in Massachusetts among community agencies to recruit community workers.
Putting Consumers First: Promising Practices for Medicaid Managed Long-Term Services and Supports
This report explains how managed care models are being used around the US to fund long-term services. It also offers advice for consumer advocates and state officials.
Report on the Respectful Language Study S.90
A report on how the state of Vermont changed the wording in their laws to be respectful toward people with disabilities. You can download the full text as a PDF file.
School Days to Pay Days: An Employment Planning Guide for Families of Young Adults with Intellectual Disabilities
A booklet for families of young adults with disabilities to guide them on how to go from school to work.
Self-Directed Employment for People with Developmental Disabilities: Issues, Characteristics, and Illustrations
This journal article explains how to help people with disabilities be in control of where they work.
Shared Living Guide
The guide is about how to help people with developmental disabilities have a home and people to share everyday life with. It is written for states.
State Trends and Innovations in Medicaid Long-Term Services and Supports
A short report about how states are using Medicaid funding innovations to allow people to move from institutions to community based settings.
Taking the Long View: Investing in Medicaid Home and Community-Based Services Is Cost-Effective
This issue brief summarizes research and shows that, over time, states that invest in Home and Community-Based Services (HCBS) experience slower Medicaid expenditure growth than states with low HCBS spending.
The Growth of Managed Long-Term Services and Supports (MLTSS) Programs: A 2012 Update
This report summarizes a study of how states are using managed care models to provide long-term care. Several states include people who have ID/DD. The report can be downloaded as a PDF file.
The National Evaluation of the Money Follows the Person (MFP) Demonstration Grant Program
This report reviews the strategies used by a sample of six states since introduction of Money Follow People demonstration in 2007.
The Seeing Is Believing Project: A "Lifeline" for Organizational Change in North Carolina
A report on a 3‐year program in North Carolina that helped agencies provide more individualized supports for people with disabilities.
Timeline for Developing a Managed Long Term Services and Supports Program
This document provides a timeline for states to use in implementing a Managed Long Term Services and Supports program.
Electronic Media (Videos, CDs, T.V., Radio, Websites, etc.)
ADA Stories – Four Communities Improve Civic Access
This website tells the stories of four communities across the United States. Each has made its programs, services and facilities more accessible for people with disabilities.
Breaking Shells
Breaking Shells is a DVD featuring two people with intellectual disabilities. They show others how to speak up for themselves.
Bridging the Aging and Developmental Disabilities Service Networks: Challenges and Best Practices
This report discusses how systems can work together to support older adults who have developmental disabilities.
Disabilityinfo.org
This website has information about programs, providers, and services for people with disabilities living in Massachusetts. It is meant to help people take control over their services.
Fiscal Analysis of Assembly Bill 896. California's Developmental Services System Unification, Finance and Economic Issues
Independent economic analysis of California Assembly Bill 896 that proposes to close three large state-operated developmental centers (institutions) in California and transfer people from these centers to community settings.
Five Year Comprehensive Plan - New York State Office of Mental Retardation and Developmental Disabilities
This plan set a five year vision for what the state of New York wanted to see in supports and services for people with intellectual and developmental disabilities.
Guidelines for Successfully Enrolling People with Disabilities in Managed Care Plans
These are for states to use in setting up managed care programs that would include people with disabilities.
HCBS Advocacy
This website offers tools and resources regarding the new regulations for home and community-based services (as of March 2014). The information is helpful for advocates.
HCBS Clearinghouse
This website helps states to share information, tools, and practical resources on how they provide supports to people with disabilities.
Health Promotion for People with Disabilities: Michigan's Strategic Plan 2008-11
This report explains Michigan’s plan to improve the health of people with disabilities.
Illinois Life Span Project
This website is a central source of information about services available to persons with developmental disabilities in the state of Illinois.
Long Term Services and Supports in Indian Country
This website provides step-by-step information to create long term services and supports in tribal communities.
Ohio Employment First Transition Framework Tools and Processes
The website offers tools that guide multiagency teams through agency-neutral, outcome-focused and person-centered planning processes for transition youth.
State Medicaid Integration Tracker
This webpage keeps track of the chsnges each state is planning for its Medicaid programs.
Understanding Community Poverty, Housing, and Disability
This online report provides information about poverty and people with disabilities. It shows how poverty makes it hard to find a good place to live.
Organizations, Programs, and Projects
21andable.org
This Pennsylvania organization wants to make sure people with disabilities continue to receive the supports they need after turning 21.
Advocates Alliance
A program in New Mexico to assess, and improve upon the quality of life of people with developmental disabilities and traumatic brain injury.
Arkansas Disability and Health Program
The state of Arkansas is working to approve the health of people with disabilities
Business Connections at VCU
This supported employment service helps people with disabilities to find employment and provides ongoing support to those who obtain employment. It works in the Richmond, Fredericksburg, and Warsaw, Virginia areas.
Health Promotion for People with Disabilities: Michigan's Strategic Plan 2008-11
This report explains Michigan’s plan to improve the health of people with disabilities.
Illinois Association of Microboards and Cooperatives
An organization in Illinois that offers self-advocates, families and friends the opportunity to create Microboards and Human Service Cooperatives.
Illinois Life Span Project
This website is a central source of information about services available to persons with developmental disabilities in the state of Illinois.
Institute for Innovative Transition
This agency works to make sure that youth with disabilities are able to move smoothly from high school to adult life. It serves Monroe County in New York state. It has information for agencies, families, and people with developmental disabilities.
IRIS (Include, Respect, I Self-Direct)
This program allows individuals to use public funds to create their own support and service plans.
Kentucky Consumer Directed Option
A program that allows Kentucky Medicaid waiver members to choose who provides their non-medical waiver services. Members can direct all or some of their waiver services.
MN Region 10 Quality Assurance
A person-driven quality assurance process operating in southeastern Minnesota to evaluate services for persons with developmental disabilities.
Money Follows the Person Grants
This federal government program assists states in helping create more opportunities for the elderly and people with disabilities to move from institutions to the community.
Montana Disability and Health
This program responds to the health needs of Montanans with disabilities across the life span.
New York State Developmental Disabilities Planning Council (DDPC)
The DD council for New York state. It seeks to improve the lives of people with disabilities in New York in the areas of community involvement, employment, recreation and housing.
OCALICON
This annual conference has many good ideas for people interested in autism, assistive technology, and low incidence disabilities. It is held in Ohio each Fall.
Oregon Council on Developmental Disabilities
A council that seeks to increase the independence, productivity, integration and inclusion of people with developmental disabilities in Oregon. It has some unique publications.
PA Waiting List Campaign
This Pennsylvania program works to end waiting lists for people with Developmental and Intellectual Disabilities who need community supports and services.
Person-Centered Agency and System Design Projects
This project helped agencies and community service systems as they helped people leave a large institution in Minnesota.
Roads to Community Living
A program in Washington State to help people living in institutions return to the community.
State Disability and Health Programs
This program helps states do a better job meeting the health needs of people with disabilities. It is offered by the Centers for Disease Control and Prevention.
The National Collaborative on Workforce and Disability for Youth (NCWD/Youth)
NCWD/Youth assists state and local workforce development systems to better support youth with disabilities with education and employment.
The Seeing Is Believing Project: A "Lifeline" for Organizational Change in North Carolina
A report on a 3‐year program in North Carolina that helped agencies provide more individualized supports for people with disabilities.
The State Employment Leadership Network
A network of state developmental disability agencies working to improve employment opportunities for people with disabilities.
Other
A Multi-Year Plan For Pennsylvania's Mental Retardation Service System
Pennsylvania's Multi-Year Plan lays out the steps the Commonwealth will take to expand the availability and improve the quality of person-centered supports.
Abuse Reporting Procedures Mandated in California
In 2002, a new law changed the way in which alleged incidents of abuse and deaths involving people with developmental disabilities were reported and investigated.
Alaska Service Principles
Alaska has nine service principles to assure quality in community services. Funding is tied to these principles for each consumer. If the consumer is not satisfied, funding is not released to an agency. These principles are the foundation of all services.
People Who Can Help
Celia Feinstein
Dr. Feinstein provides consultation and training at the level of local, state and national practices and policies in the areas of self-determination, leadership development, deinstitutionalization, quality management and waiting lists. She has work...
Valerie J. Bradley
My primary area of expertise is quality assurance and quality management at the federal, state and provider level. Val is the director of the Human Services Research Institute, which has conducted national and state evaluations and training in a wide...


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This web site is maintained by the Research and Training Center on Community Living with support from the National Association of State Directors of Developmental Disabilities Services, the Human Services Research Institute and the Administration on Intellectual and Developmental Disabilities. E-mail weste050@umn.edu.
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