 | "Community for All" Tool Kit: Resources for Supporting Community Living
A useful set of resources for promoting deinstitutionalization and institutional closure. It contains research on deinstitutionalization, as well as advocacy strategies to promote deinstitutionalization. |
| "WE CAN’T CLOSE IT YET”: HOW DISCOURSE POSITIONS PEOPLE WITH INTELLECTUAL DISABILITIES
A journal article that studies how people with intellectual disabilities are viewed in Manitoba, Canada. |
| A Review of the Medicaid Home and Community-Based Services Program in Vermont
This report summarizes findings of a case study of Vermont's Medicaid Home and Community-Based Services program. It is available online. |
| Annie's Coming Out
The true story of Annie, a girl with Cerebral Palsy who lived in an Australian institution. She learns to communicate using symbols. |
| Are the Expectations of the Lanterman Act Being Met?: An Evaluation of the California Department of Developmental Services' Performance Contracts
This scholary paper asks how well California is keeping track of its promise to help people with developmental disabilities live more independent lives. |
| Away From the Public Gaze
This is an extensive document that chronicles the history of the Fairview institution in Oregon and the experiences of the residents. |
| Behavioral Outcomes of Deinstitutionalization for People with Intellectual and/or Developmental Disabilities: Third Decennial Review of U.S. Studies, 1977-2010 (Policy Research Brief)
This brief is about the differences in the ability to do daily living skills between people who live in the community and those who don't. |
| Behavioral Outcomes of Deinstitutionalization for People with Intellectual Disabilities: A Review of Studies Conducted Between 1980 and 1999
This is a Policy Research Brief by the Research and Training Center on Community Living at the University of Minnesota. It is a summary of the research studies showing changes in people's behavior after they left institutions.
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| Christmas in Purgatory: A Photographic Essay on Mental Retardation
This book is a classic photo essay of living conditions in institutions. It was first published in 1964 and was a foundational work in reform efforts.
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| Costs and Outcomes of Community Services for People with Intellectual Disabilities
This book presents information about costs and outcomes of services and supports for people with intellectual and developmental disabilities. The main focus is on community services in the USA, but there are also contributions from the UK and Australia. |
| Deinsitutionalization of Persons with Developmental Disabilities: A Technical Assistance Report for Legislators
A report profiling efforts by states to reduce the use of large facilities to serve people with developmental disabilities. GO TO THE WEB to view the report or order a copy from NCSL. |
| Deinstitutionalization: Unfinished Business
This report reviews progress in closing institutions. It also looks at what is getting in the way, and how two states are making progress. |
| Department of Health Review: Winterbourne View Hospital
A report that reviews the quality of care individuals with intellectual disabilities receive in England. |
| Hear My Voice: Stories Told By Albertans With Developmental Disabilities Who Were Once Institutionalized
Stories told by people with developmental disabilities who lived in institutions for many years and survived to live meaningful lives in the community. |
| Impact: Feature Issue on Behavior Support for Crisis Prevention and Response
Positive and effective practices in supporting people in crisis in the community |
| Indiana Governor O'Bannon Announces Plan to Close State Facility
Indiana Governor O'Bannon's announcement concerning the planned closure of Muscatatuck State Developmental Center. |
| Living in the Freedom World: Personal Stories of Living in the Community by People Who Once Lived in Oklahoma's Institutions
A group of personal stories from people with disabilities who've left institutions to live in the community. |
| Medicaid Home and Community-Based Services: The First 20 Years (Policy Research Brief)
This Brief reports on the Medicaid Home and Community-Based Services waiver program during its first 20 years, from 1982 through 2002. |
| Minnesota Closes Institutions
Press release concerning Minnesota's closure of all its institutions. |
| Money Follows the Person 2011 Annual Evaluation Report
A report on the progress and effects of the money follows the person program. This federal program gives people who need long-term services and supports more choices about where they live and receive care. |
| Money Follows the Person Demonstration Program: A Profile of Participants
A report about the participants in a government program that helps people on Medicaid move from institutions to live in the community. You can download it as a PDF file. |
| Olmstead Progress Report: Disability Advocates Assess Olmstead Implementation After Two Years
In this report disability advocates rate states efforts to implement Olmstead and identify promising promising practices in state Olmstead plans. |
| Olmstead: Reclaiming Institutionalized Lives
A state of the states report on the implementation of the Olmstead decision |
| Once You Enter, You Never Leave: Deinstitutionalization of Persons with Intellectual or Mental Disabilities in Croatia
This report is about institutions in Croatia. It shows how these violate the ideas of the United Nations that Croatia has agreed to. |
| Out of the Darkness and into the Light: Nebraska's Experience with Mental Retardation
A book about Nebraska's model for community living for persons with mental retardation. |
| Quality Assurance for People Moving from Residential Habilitation Centers
This short document explains how the State of Washington helps people keep a high quality of life as they move from an institution to another location. |
| Raymond's Room: Ending the Segregation of People with Disabilities
A book that questions "the way have always done things." It then calls for a new look at how America provides services for people with disabilities. |
| Residential Services for Persons with Developmental Disabilities: Status and Trends (RISP)
This annual report provides information about where people with developmental disabilities live, and how Medicaid dollars are used to pay for those supports. You download it as a large PDF file or make your own shorter reports online. |
| Speakeasy-People with mental handicaps talk about their lives in institutions and in the community
In this book the author interviews people with intellectual disabilities who have lived in institutions and in the community. |
| State Studies Find Home and Community-Based Services to Be Cost Effective
This document summarizes findings across 38 state studies about the effectiveness of home and community based services (HCBS). |
| State Trends and Innovations in Medicaid Long-Term Services and Supports
A short report about how states are using Medicaid funding innovations to allow people to move from institutions to community based settings. |
| Status of Institutional Closure Efforts in 2005 (Policy Research Brief)
This Brief talks about the issues that states face as they consider whether to increase, reduce, or close institutions. |
| The Closure of Frances Haddon Morgan Center: A Quality Assurance Report
This report is about how the state of Washington made sure people received quality services during and after an institution closed. |
| The Evolution of State Operated Services
A history of public institutions in Minnesota. There are many pictures and stories going back to the 1800s. |
| The Origin and Nature of Our Institutional Models
Book exploring how institutions have traditionally treated persons labeled "retarded." |
| The State Boys Rebellion
This book tells the story of the 1957 'uprising' at Fernald School in Massachusetts. It helped end the common practice of forcing people with disabilities to live in institutions. |
| The Willowbrook Wars: A decade of struggle for social justice
This book traces the history of reforms and litigation at the infamous Willowbrook State School in Staten Island, New York from 1972 to 1983. |
| Trends and Challenges in Publicly-Financed Care for Individuals with IDD
This report describes nine dilemmas in arranging service systems for people with disabilities. |
| What's Possible: 9 Stories of Changed Lives
This booklet tells the stories of people who now call the community home after living in an institution for decades. |
| Willowbrook Futures Project
This study found that person-centered planning helped people with disabilities have better outcomes than a more traditional service approach. |
| A Little History Worth Knowing: Disability Down Through the Ages
Video on the history of disabilities that includes past abuses but ends hopefully, looking at how changing attitudes and advancing technology are helping people with disabilities enter the global economy. |
| Are the Expectations of the Lanterman Act Being Met?: An Evaluation of the California Department of Developmental Services' Performance Contracts
This scholary paper asks how well California is keeping track of its promise to help people with developmental disabilities live more independent lives. |
| Balancing Incentive Program: Strengthening Medicaid Community-Based Long-Term Services and Supports
A brief report about a federal program that offers states funding to move away from institutionally-based care and toward home-and community-based services. |
| Behavioral Outcomes of Deinstitutionalization for People with Intellectual and/or Developmental Disabilities: Third Decennial Review of U.S. Studies, 1977-2010 (Policy Research Brief)
This brief is about the differences in the ability to do daily living skills between people who live in the community and those who don't. |
| Bellevue: Inside Out
A film that tells the true story about what happens at Bellevue Hospital in New York City. It does this through the eyes of actual patients as they struggle with their illnesses. |
| Beyond Forest Haven
Forest Haven was an institution for people with disabilities in Washington DC. This DVD and study guide look back at the history of Forest Haven's closing and the journey to build a better life in the community for some of the people who lived there. |
| Deinsitutionalization of Persons with Developmental Disabilities: A Technical Assistance Report for Legislators
A report profiling efforts by states to reduce the use of large facilities to serve people with developmental disabilities. GO TO THE WEB to view the report or order a copy from NCSL. |
| Departing Rosewood
This movie shows what it is like to move out of an institution and live in the community. You can watch it online and order your own copy for free. |
| Department of Health Review: Winterbourne View Hospital
A report that reviews the quality of care individuals with intellectual disabilities receive in England. |
| El Peecho's Pennhurst Page
This is a website dedicated to the former residents of the Pennhurst State School in Pennsylvania. It includes a good amount of information on Pennhurst, including first-hand accounts of what went on at the institution. |
| Feud Over Best Setting for the Disabled (Wall Street Journal Article)
A news article from the Wall Street Journal. It is about a debate in Arkansas over the role of institutions for people with disabilities. |
| Fiscal Analysis of Assembly Bill 896. California's Developmental Services System Unification, Finance and Economic Issues
Independent economic analysis of California Assembly Bill 896 that proposes to close three large state-operated developmental centers (institutions) in California and transfer people from these centers to community settings.
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| Front Wards, Back Wards
A film about America's first institution for people with disabilities. Fernald in Massachusetts was created in 1848 and is still open today. |
| GAO Report: States’ Plans to Pursue New and Revised Options for Home- and Community-Based Services
A report from the Government Accountability Office about the four Home and Community-based Service options for Medicaid beneficiaries. |
| Hurry Tomorrow
Hurry Tomorrow is a compelling documentary about the loss of
human rights suffered by psychiatric patients in a state mental institution. |
| If Those Walls Could Talk: They Would Tell of the Resilience of the Human Spirit
This video documents the experiences, impressions and memories of people with developmental disabilities and their families who were associated with the former Rydalmere Hospital in Sydney NSW. |
| Impact: Feature Issue on Behavior Support for Crisis Prevention and Response
Positive and effective practices in supporting people in crisis in the community |
| Indiana Governor O'Bannon Announces Plan to Close State Facility
Indiana Governor O'Bannon's announcement concerning the planned closure of Muscatatuck State Developmental Center. |
| Institute on Public Policy for People with Disabilities
This agency is working to close institutions in Illinois. |
| Institutions: Close Them! (Film)
A film in which five people share their stories about living in an institution. It is part of work by People First of New Hampshire to close institutions. |
| Justice Department Moves to Intervene in Texas Case to Enforce the Supreme Court’s Olmstead Decision
In June of 2011, the US Department of Justice sued the state of Texas. The reason was the high number of people with disabilities living in state institutions. |
| Living Proof: The Right to Live in the Community
"Living Proof: The Right to Live in the Community" is a 30-minute film that documents individuals with disabilities in Zagreb, Croatia who have moved out of institutions and now lead lives in the community. Subtitles in English. |
| Medicaid Home and Community-Based Services: The First 20 Years (Policy Research Brief)
This Brief reports on the Medicaid Home and Community-Based Services waiver program during its first 20 years, from 1982 through 2002. |
| National Review of Restraint Related Deaths of Children and Adults with Disabilities: The Lethal Consequences of Restraint
This report sums up what was learned from studying the cases of 61 people with disabilities who died while being restrained. |
| Olmstead Decision
The US Supremes Court's Olmstead decision has major implications for services for people with disabilities. Mall visitors can find out more through the links here. |
| On The Outside
On the Outside tells inspiring stories about people in West Virginia who returned to the community from institutions. |
| Recollections of the Institution-Part 1: Personal Reflections
In archival footage and interviews, people with intellectual disabilities, who once lived institutional lives, express their daily routines, adversity and insights about living inside the walls. |
| Robert Perske: Street-Court-Prison Worker and Advocate
This website is about the work of Robert and Martha Perske. Robert has spent many years advocating for people with disabilities caught in the criminal justice system. |
| Scoop Essentials: In Search Of Home Sweet Home
An online article about housing options available to persons with disabilities. It shows how things have changed over the last 40-50 years. Visitors can ask questions or add comments and these will appear below article. |
| Status of Institutional Closure Efforts in 2005 (Policy Research Brief)
This Brief talks about the issues that states face as they consider whether to increase, reduce, or close institutions. |
| The Civil Rights Litigation Clearinghouse (Olmstead Cases Special Collection)
This special collection of the clearinghouse provides detailed information about important cases related to the U.S. Supreme Court Olmstead v. L.C. ruling. |
| The Community Imperative
A video record of a national conference held in 2002 affirming the rights of people with developmental disabilities to live in the community. |
| The Olmstead Decision: Implications for Medicaid
Policy brief concerning the US Supreme Court's Olmstead decision and its implications for the provision of Medicaid services. Though this brief is dated, it is still available online. |
| Trends and Challenges in Publicly-Financed Care for Individuals with IDD
This report describes nine dilemmas in arranging service systems for people with disabilities. |
| Where's Molly?
This film chronicles the reunion of Jeff Daly and his sister Molly. Molly was sent to live in an institution at age 3, so they had not seen each other for 47 years. Their story explores the conditions of the institution Molly lived in. |
| Willowbrook Futures Project
This study found that person-centered planning helped people with disabilities have better outcomes than a more traditional service approach. |
| www.SelfAdvocateNet.com
An interactive, global website for people with intellectual disabilities and their supporters. |
