|Advance Directives and Advance Care Planning for People with Intellectual and Physical Disabilities|
This paper is about end of life planning for people with intellectual or physical disabilities. The full report is available online.
|Advising Through Self-Determination: An Information Guide for Advisors|
This guide was written to help train people to be advisors to people with disabilities.
|Attention: This is Your Life! What Do You Want to Do with It?|
This workbook helps self-advocates think about decision-making and what they want to do with their lives. It has pictures and easy to understand language. You can download it for free!
|Autism All-Stars How We Use Our Autism and Asperger Traits to Shine in Life|
This book has personal stories from successful people who have Autism Spectrum Disorder.
|Can I Tell You about Autism?|
This book explains what it is like to have autism. The first part is written for children, while later chapters are written for adults and explain how they can help.
|Charting the Life Course: A Guide for Individuals, Families, and Professionals|
This booklet has important questions for people with disabilities to ask at different points in their life. They start at infancy and go through end-of-life and cover many topics.
|Community conversations with people with developmental disabilities in California|
This booklet explains the choices people with disabilities have in life, and the choices they would like to have. It was made from interview with 400 self-advocate who live in California.
|Consent Handbook for Self-Advocates and Support Staff|
This workbook for self-advocates and support staff provides tools to understand and implement crticial life decisions.
|Creating Blue Space: Fostering Innovative Support Practices for People with Developmental Disabilities|
This book is about how agencies and systems can best provide individualized support to people with developmental disabilities.
|Critical Issues in Intellectual and Developmental Disabilities: Contemporary Research, Practice, and Policy|
This manual explores emerging issues in the fields of intellectual and developmental disabilities in ten areas.
|Disabilities Studies Quarterly|
This is the first journal in the field of Disability Studies.You can view all articles online for free.
|Disabled and Challenged: Reach for Your Dreams!|
Terry Scott is a young adult with muscular dystrophy. He writes about living a full life. He gives ideas about practical topics, such as relationships, jobs, and planning for the future.
|Facilitated Decision Making Curriculum|
This short curriculum helps service coordinators learn how to support people with disabilities in making their own decisions. You can download it for free as a pdf file.
|Fact Sheet: Summary of Self-Determination by Michael Kennedy and Lori Lewin|
This summarizes the meaning of self-determination. It was written by two self-advocates.
|Family Support, Culture and Disability|
This curriculum helps self-advocates and families think about the kind of support that works best for them.
|Flourish: People with Disabilities Living Life with Passion|
This book has many stories of people with disabilities who have followed their dreams. It also tells the stories of the people who provided support.
This booklet has many activities to help people build self-determination and self-advocacy skills. It can be downloaded for free as a PDF file.
|Getting to Community: Supporting People with Developmental Disabilities in their Pursuit of the Good Life|
This book is about promoting self determination and great lives for people with disabilities.
|Hiring and Managing Personal Assistants|
This book teaches self-advocates how to hire and manage the DSPs who assist them at home and at work. It can be downloaded as a PDF file.
|Illinois Guardianship Reform Project|
This report looked at the guardianship system in Illinois and found some problems. The report also suggested ways to fix them.
A newsletter with articles on research, current trends in services, and success stories. Each issue has a specific focus area important to persons with disabilities.
|IQ of 63 - So What!: Going Beyond Everybody Else's Expectations|
Ben is a man with cerebral palsy. His story shows how important it is for people with disabilities to move beyond labels.
|It's My Choice|
This self-guided workbook can help people prepare for their person-centered planning meetings. It is available for free as a PDF download.
|Jabbers: Dreams N' Goals|
Jabbers are a series of games for self-advocates that can be downloaded for free. This one helps people set personal goals and work towards them.
|Journal of Intellectual & Developmental Disability|
This Australian, academic journal publishes current research and opinions on positive changes to the quality of life for people with intellectual disabilities.
|Living Your Own Life With People You Can Count On|
This booklet talks about how support teams can help in supporting self-determination.
|Making my own choices|
This workbook helps people make choices and plan their futures. It is easy to understand.
|Minnesota Self-Determination DSP Training Modules|
A set of training modules to teach DSPs how to support the self-determination of people with disabilities. These modules are most useful in residential programs and have many activities.
|Minnesota Self-Determination Scales|
These measure how much self-determination people with disabilities have in their lives. There are separate scales that show the ability of DSPs to support people's self-determination.
|Outcomes of the Robert Wood Johnson Foundationís National Initiative on Self-Determination for Persons with Developmental Disabilities|
This report summarizes the results from a nationwide program to help people with disabilities and their families take greater control of their services and supports.
|Personal Preference Indicators: A Guide for Planning|
This tool is a guide for learning about the person's preferences. It is helpful when planning with a person who has a developmental disability, and you can download it for free.
|Promoting Self-Determination in Students with Developmental Disabilities|
This book tells how to teach people with disabilities to have control over their lives.
|Raising Difficult Issues with your Service Provider|
This booklet helps consumers begin dialogue and raise issues with their service provider.
|Real Life Quality Standards|
A book that helps people with disabilities think about how satisfied they are with where they live, what they do with their friends, ect. It can help people plan for the future. You can download it for free.
|Research to Practice in Self-Determination Series|
These seven magazines explain how self-determination helps people who have intellectual disabilities. They are written at a college level.
|Roles Based Planning- Second Edition|
This book reviews social role valorization, individual rights, self-determination, and community integration. The author reflects on differences these innovations have made, and presents a model of his own. You can download the entire book as a PDF.
This guide and DVD helps people with disabilities tell others what is important to them.
|Self-Determination and You|
This toolkit (workbook and CD) will help people to take control of their lives.
|Self-Directed Employment for People with Developmental Disabilities: Issues, Characteristics, and Illustrations|
This journal article explains how to help people with disabilities be in control of where they work.
|Support Networks A Guide for Self Advocates|
This booklet gives self-advocates ideas on how to build a support network.
|The Arc's Position Statement on Self -Determination|
This explains the Arc's position on the right of people with disabilites to live self-determined lives.
|The Child Preference Indicators|
This assessment tool helps professionals learn the true preferences and abilities of children. It is completed with lots of input from families.
|The International Journal of Disability, Community and Rehabilitation (IJDCR)|
This online journal publishes research articles from around the world on the issues of people with disabilities. Anyone can read the articles online for free.
|The Robert Wood Johnson (RWJ) Foundation Self Determination Initiative: Final Impact Assessment Report|
This is the executive summary of the Human Services Research Institute's evaluation of the Robert Wood Johnson Self Determination initiative. You can download it as a PDF.
|Thinking Ahead: My Way, My Choice, My Life at the End|
A workbook to assist people in making decisions about the end of their life. There are also three videos about the guide you can watch online.
|What is Self-Determination and Why is it Important|
This booklet explains what self-determination is using the stories of people with disabilities.
|When You're 18 You Are in Charge of Your Health|
This book teaches young people with disabilities how to take care of their health care needs. You can download it for free as a PDF.
Angela Amado has conducted training throughout the U.S., Canada, and also in the Netherlands and Israel on person-centered planning, friendships between people with and without developmental disabilities, community building, self-determination, and per...
Onondaga Community Living (OCL) is an organization that transitioned from providing group home services to personalized services. We provide personalized suports to adults with developmental disabilities in every type of service that we do, whether it ...
I am the CEO and co-founder of Neighbours, Inc, an innovative organization providing self-directed supports to people in New Jersey and Pennsylvania. I regularly provide training and consultation on all aspects of organizational change (moving to self...
I am a law professor at American University, Washington College of Law, where I have taught since 1983. Among other things, I teach in the area of disability law, covering statutes and regulations under Section 504, the ADA, and IDEA, and criminal jus...
Ruthie-Marie Beckwith, Ph.D. is the Executive Director of the Tennessee Microboards Association, Inc. a statewide non-governmental organization dedicated to helping people with disabilities self-manage their services and supports. Prior to developing ...
I am the director of the Self-Advocacy Associations of New York State, and have been for the last 12 years. I have worked with and for people with developmental disabilities since 1969 when I was an attendant at a state institution--yes it was a horr...
Together with 17 other Center for Self-Determination Resource Guides we provide training and technical assistance on all aspects of self-determination including: developing highly personal individual budgets and plans; crafting Medicaid waivers that pr...